meandhepc

being told and living with Hep c

Name:
Location: nottingham, east mids, United Kingdom

married,2 boys,we are all vegetarian,and I've been veggie for 30 odd years,Type 3 with cirrhosis,age 51

Saturday, June 17, 2006

Well,Idont do doctors,never have done,but at the beginning of last December I had some really bad indegestion that went on for about a week ,and no amount of Rennies or what ever would touch it.So the missus dragged me to the doc's,and thats where it starts. 2 days later the phone rings,"That blood sample I took, I need you and your wife to come to see me right away"So down we trot.
It appeared Ive a platelet count of 50,and my Liver was showing some strangeness.
For the next 3 weeks we thought I had cancer because no one was saying any thing,and they'd pushed for an urgent appointment at the QMC.
After that came loads of tests,"trans jugular biopsy,endscopy,Xrays and scans and they took more blood than I thought it possible for one arm to hold.
The results were -platlet count of 50,virol load 221.083,HG 14.4,HCV type 3,and as it appeared I'd had the virus since the mid 70s I was also cirrotic.
I am now starting week 13 of tx today,and I save my injection (180mg peg interferon) untill a few hours before bedtime,the 1200mg riboviron split twice a day,morn and night.
Its been one hell of a roller coaster ride,with more downs then ups,Icant be bothered to take the dog out any more (I get short of breath and tired)in fact I cant be bothered to do much of anything,except get on at my youngest for the slightest thing,which is so unfair,we've told him its the meds i'me taking for my liver problems thats causing my bad head space,he seems to understand.
I have decided to do this log after hearing the play on R4 the other week,it was like a ray of light"there are others too,people who are going through the same as me,I'me not alone "
I've never been alone really,my wife is a tower of strength and my family and friends are very supportive,but knowing others share the same pain and can burst into tears for nothing when feeling low,that its not just me that feels as if I'me cracking up,this helps!
My last test results (april)were good,platlets have gone up to 94,virol load dropped to 176.146,HG had dropped to 9.9 but had climed to 11,and I'de lost over a stone this last 8 weeks,but "Hey"I've managed to put 2lbs back on.
I will get the results of May's tests in 2weeks,hopefully they will continue to improve

1 Comments:

Blogger carol said...

Hello Steven,

Nice to see a new blogger, got here via the forum. Wishing you all the best with treatment.
Glad you liked the play (other half was one of the bloggers) Don't forget the forum is there for your wife as well!
Take care,

Carol

9:13 PM  

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