meandhepc

being told and living with Hep c

Name:
Location: nottingham, east mids, United Kingdom

married,2 boys,we are all vegetarian,and I've been veggie for 30 odd years,Type 3 with cirrhosis,age 51

Monday, June 19, 2006

Injection 12 and 13
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Just been reading some blogs and I realize Ive got a long way to go yet,
although I was'nt expecting it to be over in a couple of weeks anyway,allways new I'de got the long haul.
So,went to the Isle of wight rock festival a couple of weeks ago,"fantastic",Richard Ashcroft,the Prodigy and the Primal Scream did it for me ,not to mention of course "Mr Lou Reed".
Anyway,I did'nt want to be on a bummer that week end , so instead of no12 on the friday,Isaved it untill we got back on the monday.
The injections were getting quite good?,but that one sent me straight back to bad flu symptoms and put me on my back for a day or two,which is when the tears came,"dam these emotions",does your head in
My nurse said stagger no13 , do it on the saturday and then the following week you can return to friday(Iprefer to be "poorly"at weekends,and try for some sembalance of normality during the working week)
Woke up sunday morn and thought "great,no symptoms",till I got up.
Felt like an Iron band had been clamped around my chest,and this dry rasping cough which I'de been nurturing for the last 3 months felt as if it was about to shoot my lungs straight out of my mouth,and today I've been up and down,feeling as sick as a pig and a bit grumpy too,but never mind eh !,such things are sent to try us!
Ihave decided that my favorite song is the Pythons "always look on the bright side of life"
See ya !!

Saturday, June 17, 2006

Well,Idont do doctors,never have done,but at the beginning of last December I had some really bad indegestion that went on for about a week ,and no amount of Rennies or what ever would touch it.So the missus dragged me to the doc's,and thats where it starts. 2 days later the phone rings,"That blood sample I took, I need you and your wife to come to see me right away"So down we trot.
It appeared Ive a platelet count of 50,and my Liver was showing some strangeness.
For the next 3 weeks we thought I had cancer because no one was saying any thing,and they'd pushed for an urgent appointment at the QMC.
After that came loads of tests,"trans jugular biopsy,endscopy,Xrays and scans and they took more blood than I thought it possible for one arm to hold.
The results were -platlet count of 50,virol load 221.083,HG 14.4,HCV type 3,and as it appeared I'd had the virus since the mid 70s I was also cirrotic.
I am now starting week 13 of tx today,and I save my injection (180mg peg interferon) untill a few hours before bedtime,the 1200mg riboviron split twice a day,morn and night.
Its been one hell of a roller coaster ride,with more downs then ups,Icant be bothered to take the dog out any more (I get short of breath and tired)in fact I cant be bothered to do much of anything,except get on at my youngest for the slightest thing,which is so unfair,we've told him its the meds i'me taking for my liver problems thats causing my bad head space,he seems to understand.
I have decided to do this log after hearing the play on R4 the other week,it was like a ray of light"there are others too,people who are going through the same as me,I'me not alone "
I've never been alone really,my wife is a tower of strength and my family and friends are very supportive,but knowing others share the same pain and can burst into tears for nothing when feeling low,that its not just me that feels as if I'me cracking up,this helps!
My last test results (april)were good,platlets have gone up to 94,virol load dropped to 176.146,HG had dropped to 9.9 but had climed to 11,and I'de lost over a stone this last 8 weeks,but "Hey"I've managed to put 2lbs back on.
I will get the results of May's tests in 2weeks,hopefully they will continue to improve